15 April 2014, 17:07
The law defines the notion of a “rare (orphan) disease” and includes a number of legal provisions that aim at prevention of these diseases and securing a full-fledged realization of rights of persons suffering from these diseases to medical aid.
Under the document, a rare (orphan) disease is a disease that threatens person’s life or progresses chronically, leads to reduced life expectancy of a citizen or his/her disability, and affects a small percentage of the population (1:2000).
The respective bill was registered under No. 2461.